First Day Do-Over

Today was not the first day of school for my son. 

Last year...

I will not allow today to be classified as his first day of preschool in the 4’s Classroom at his wonderful children’s center near our home in Denver.  Because I believe my son and I deserve a First Day of School Do-Over. 

A Do-Over where:

-he is physically able to stay in the classroom without suffering from major anxiety due to sensory overload. 

-he doesn’t have to sit on the floor out in the hallway on his mom’s lap because it’s less chaotic, when all the other parents have left the building for a few hours so the kids could get used to their new classroom, teachers and classmates. 

-he won’t have to go all the way outside and sit on a bench with his mom while the other kids get to eat snack together for the first time in their new classroom. 

-friendly and helpful teachers and parents don’t bombard him from all angles with loving pats on the head, back or shoulders because they don’t realize that to my son, a soft touch on the arm can feel like a punch, scratch or scrape.  (Yes, a well-meant, gentle and innocent sign of affection for neurotypical people can feel like physical assault for him.)

-there are no tears.  From his own mom.  In public when she’s supposed to be strong and hold it together for him.

Today was not the first day for many reasons...

Technically you could call today the first day of school for the 4’s Class, because the kids had an abbreviated “meet the class and teacher” type of morning – just kiddos.  No parents (well, I ended up being there the whole time).  The first full day of school is next Wednesday.  Wednesday will be our First Day of School Do-Over Day.

It was not the first day for him at a new preschool – he attended the same school last year in the 3’s Classroom.  It was not his first day entering a new school building with a new preschool director, new teachers, new classmates, and new parents– the building is the same, same lovely and accommodating director, we know three out of four of his teachers, and seven out of the 11 kids in his class. 

Next Wednesday is when:

-we will take the obligatory first day of school photo with my son holding up some type of chalkboard or sign inscribed with school and developmental milestone information that nobody will read.  Perhaps I’ll even do a side-by-side collage of last year and this year’s pics or some crap. 

-we will take him out for ice cream to celebrate a new school year. 

-he will have his brand new John Deere backpack, John Deere snack bag, John Deere lunch bag, and green and yellow first day of school Saucony sneakers.  (That I ordered on Amazon.  That arrived on our doorstep exactly two hours after today’s morning at school.) 

-I will have all of his required paperwork turned in so there is no concern or worry about if he is legally allowed to stay. (The paperwork I planned on finishing and turning into the school office when I picked him up today.  I didn’t have the chance to leave school – hence, no paperwork.)

-I will create, laminate and distribute a sensory profile for my son’s teachers, including information on his sensory triggers, signs of dysregulation, and specific ways to accommodate for his needs.  (Lots of extra behind-the-scenes work on my end, but needs to be done.)

-I will hopefully be able to drop my son off at his classroom, leave the building, and run errands or clean the house.  Just like the other parents.  Parents of kids who do not have Sensory Processing Disorder.

Stay tuned for a First Day of School Do-Over Day picture of my amazing son.  Because cliché will tell you that there is a first time for everything.  And I will tell you that if that first time happens and it’s heartbreakingly tough, I will dig my heels in and orchestrate a joyful First Day Do-Over for him.  

Everything I Am Not

Like frail foliage fading on a magnificent mountainside, indulgently parched, am I.

I am a resoundingly blue sky daubed with hopeful clouds - swollen, distended drifters.  I am dry, yet soft. Jagged and withered, strong and tall. Simultaneously wilt and bloom, do I.

I am warm, playful gusty wind, mischievously embraced by the sun.   I am cool, still water – reflectively crisp.  I ebb, flow, gush, ripple and halt.  A whimpering howl, am I.

I am dropped, scattered, seeds making my fateful journey bound for a fresh beginning.  I am the stubborn few clutching to the barren stem.  I am wholly shattered. Harmoniously bold and muted. Enthusiastically jaded, am I.

I am vividly bright, dazzlingly opalescent.  A misconstrued blotch of brown, green, white and blue.  Duplicitous dark shadows shade and distort - neither holding me up nor dragging me down.  Pleasantly pliable, am I.

I am feebly exquisite and honorably scarred. 

Painfully proud, am I.

Decency Despite Dysfunction

45 minutes.

I spent 45 minutes on the Wal-Mart floor today (you read that right) waiting for my son's sensory meltdown to subside. 

We were there for Pull Ups and Children's Claritin. I would have left our cart in the middle of the aisle and calmly carried him straight out of there kicking and screaming...if we didn't absolutely need those two items.  Instead, I cradled my 4-year-old as he shook, kicked, screamed and bawled in my arms. We were in a sensory stalemate, if you will, and we needed to ride it out until it subsided and we could calmly make our next move.  "Riding it out," this time, occurred sitting in the middle of the Wal-Mart floor.

All because: I wouldn't buy him a toy.

To onlookers, that's what it most certainly must have seemed like. And boy...did I get cross looks, stares, and eye rolls.  It felt like their glares were burning a  harsh tattoo of judgement straight across my weary forehead that read: BAD MOM.

I try to explain to people that his meltdowns aren't ever really about "the toy."  Not getting the toy is just the thing that sent him over the edge. The build-up started well before we made it to the toy aisle.  When we first walked into the store, an employee was pushing a long line of shopping carts inside and they crashed (loudly and unexpectedly) into the wall next to us. TJ had also never been to this store so the surroundings were unfamiliar (he knows his way around Target though people...let's be real). In addition, he was hungry and tired, and the kicker - his mom has been really friggin sick for months now. By the time I told him "no" in response to getting the toy, he was DONE.

This is what SPD looks like, folks. It Iooks like a spoiled little boy who wants a toy and throws a fit if he doesn't get his way. It looks like a whiny, bratty little kid whose mom lets him walk all over him. For the few seconds that passers-by notice a screaming four-year-old in his mom's lap sitting in the middle of an aisle in Wal-Mart, it can look to them like the mom is a big hot mess who doesn't have her $hit together.

What I wish people COULD see is that my little boy is a sweetheart who says the words "I love you" at least 20 times a day. He loves vehicles and cats and turns out he is really good with directions. He uses words like "impressive" and "hoist" and loves to sing "The Tree Farm" radio jingle. He struggles more each day than many kids we know, and is basically just trying desperately to hold his own $hit together.

Thank you...to the few kind strangers who stopped to ask if we were okay, even though they had no clue about our situation and chose not to judge. Most importantly, thank you to the one woman who whispered to me, 

You're a wonderful mom...I wish all moms could be like you.

Those words hit me like a ton of bricks and immediately, even though I had been trying to hold them back so TJ wouldn't see them, my tears began to flow.

I realize that he can't control his meltdowns...that sensory overload takes over and he becomes unable to process information in a functional way. I will hug him and validate his feelings and tell him that it's ok to be sad and disappointed. But when I have the time, wherewithal and strength, I will do my best to stick to my boundaries and teach him to be a decent human being even though things are hard for him. It seemed like 3 hours, but I stood my ground and he did not get that toy.

Today's lesson on human decency, despite debilitating dysfunction, brought to you by Sensory Processing Disorder, our messy Wal-Mart meltdown, and a stranger's whispered words.